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ZXzvgQPIarfrzVdJbUNaq6F4YVMcRcZ6dgNKQiaeSAA2QXYjXrXuCctSVAQqYNbuZjzKxZyGkiJeTrBIpuUXPAK6fAj8sbNR3M

Parent, Guardian and Family Perceptions of Representation of Hearing Loss in Children's Literature

You are asked to consider joining a research study. The study's purpose is to learn more about what parents, guardians, and family members of kids with hearing loss think of how hearing loss is portrayed in children's literature. If you join the study, you'll be asked to complete a survey about your thoughts on the quality and inclusivity of children's literature depictions of hearing loss and characters with hearing loss. The survey includes 21 questions and should take about 15-20 minutes to complete. You can take the survey using any device that has online access (phone, tablet, computer, etc.). Survey responses are anonymous. We will not collect any information that identifies you.

We will keep the survey responses confidential and stored in a secure database. The UAMS Institutional Review Board (IRB) and other institutional oversight offices may review the information we collect, to make sure we are doing the research correctly.

It's entirely up to you whether or not to join this research study. Nothing about your ability to get care from UAMS will change no matter what you decide. You can decide not to participate in the study even after you have started the survey. Simply do not submit the electronic survey to us. We don't expect you to benefit directly from your participation. However, what we learn from the research may help patients, families, and care providers in the future.

For questions or concerns please contact: Dr. Charia Hall, Au.D., CCC-A (principal investigator) via email at chall@uams.edu or the UAMS IRB office at IRB@uams.edu

Page 1 of 1

Are you a parent/guardian or family member of a child with hearing loss?

2. What age group does your child(ren) fall under? Select all that apply.

* must provide value

a. 0-2 years

b. 3-5 years

c. 6-12 years

d. 13-17 years

e. 18+ years

3. What ethnicity do you identify for your child?

* must provide value

4. What race do you identify for your child? Select all that apply:

* must provide value

White

African American

American Indian or Alaskan Native

Asian

Native Hawaiian or other Pacific Islander

5. What is the primary method of communication used within the family?

* must provide value

a. American Sign Language (ASL)

b. Auditory-Oral

c. Cued Speech

d. Signed Exact English (SEE)

e. Total Communication

f. Other

reset

If other primary method, please list:

6. If you are a parent/guardian, what type of device does your child wear, if any?
Select all that apply.

* must provide value

a. Hearing aid

b. Cochlear implant

c. Bone-anchored implant (soft-band or implanted)

d. My child does not use technology

7. Do you feel there is a lack of children's books that depict a character with hearing loss?

* must provide value

Yes

reset

8. How many books would you estimate you are aware of that have a MAIN character with some type/degree of hearing loss?

* must provide value

9. How many books would you estimate you are aware of that have a SECONDARY character with some type/degree of hearing loss?

* must provide value

10. What types/genres of books have you seen that include characters with some type/degree of hearing loss? Select all that apply.

* must provide value

a. Board books

b. Picture books

c. Sticker books

d. Early readers

e. Chapter books

f. Young adult books

11. Of the books you have read that depict hearing loss, how do you feel hearing loss is portrayed?

* must provide value

12. Please use this question to expand on your answer for #11, if you'd like.

Expand

13. Of the books you have read that depict hearing loss, which of the following have you seen depicted? Select all that apply.

* must provide value

a. Hearing Aids

b. Cochlear Implants

c. Bone anchored implant (soft-band or implanted)

d. American Sign Language (ASL)

e. Signed Exact English (SEE)

f. Clinical Audiology

g. Educational Audiology

h. Assistive Technology (FM systems, remote mics)

i. Other:

If other subject depicted, please list:

14. Of the books you have read that depict hearing loss, how do you feel that the character(s) with hearing loss are depicted?

* must provide value

15. Please use this space to expand on your answer for #14, if you'd like.

Expand

16. Of the books you have read that depict hearing loss, how do you feel that the impact of the hearing loss was the depicted?

* must provide value

17. Please use this space to expand on your answer for #16, if you'd like.

Expand

18. Of the books you have read that depict hearing loss, what type of educational setting is shown? Select all that apply.

* must provide value

a. General education classroom

b. Special Education/Inclusion classroom

c. Homeschool Setting

d. Deaf School (residential or day school)

e. I have not read any books that depict an educational setting

f. Other:

If other educational setting, please list:

19. In what topic area(s) would you like to see more children's books available?
Select all that apply.

* must provide value

a. Hearing Aids

b. Learning how we hear (with and without hearing aids)

c. American Sign Language (ASL)

d. Signed Exact English (SEE)

e. Clinical Audiology appointment & processes

f. Educational Audiology (functioning in classrooms, etc.)

g. Cochlear Implants

h. Bone anchored implant (soft-band or implanted)

i. Assistive technology (FM systems, remote mics)

j. Other:

If other topic areas, please list:

20. Character Wise: in your opinion, what would you like to see more of in children's books?
Select all that apply

* must provide value

a. Diverse characters with hearing loss

b. Diverse characters with amplification devices

c. Princesses/Superheroes with hearing loss

d. Princesses/Superheroes with amplification devices

e. Animals with hearing loss/devices

f. Animals with amplification devices

g. Characters who use sign language (ASL or SEE) as primary mode of communication

h. Deaf Culture characters and/or families

i. Other:

If other character, please list:

21. What types/genres of books would you like to see include more characters with hearing loss? Select all that apply.

* must provide value

a. Board books

b. Picture books

c. Sticker books

d. Early readers

e. Chapter books

f. Young adult books

You have selected an option that triggers this survey to end right now.

To save your responses and end the survey, click the 'End Survey' button below. If you have selected the wrong option by accident and/or wish to return to the survey, click the 'Return and Edit Response' button.